HealthKey

Paid

Open source infrastructure for patient-owned health records

4.7

HealthcareContact

Type

Saas

Company

HealthKey

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About HealthKey

HealthKey provides PHRAME, an open source infrastructure stack for foundations, health information exchanges (HIEs), and clinics to build patient-owned health records (PHR). The platform enables universal import of medical records from hospitals, labs, specialists, and wearables; supports genomics and biomarker data; offers real-time clinical trial matching; integrates wearable device data; allows secure clinician sharing with audit trails; and is built on OMOP CDM, FHIR, and HL7 standards with end-to-end encryption and HIPAA compliance. PHRAME is designed to give patients a complete, longitudinal health record that they control and that acts on their behalf.

Key Features

Universal Import – Aggregates records from hospitals, labs, specialists, and wearables into a single longitudinal record

Genomics & Biomarkers – Supports genomic assay results, biomarker profiles, and lines of therapy for complete oncology records

Real-Time Trial Matching – Continuously screens every member's record against open clinical trials without manual effort

Wearable Integration – Ingests heart rate, sleep, activity, blood oxygen from wearables, standardized alongside clinical data

Clinician Sharing – Secure, permissioned links with full audit trail; no fax or CD-ROMs required

Patient-Owned by Design – Data never sold; members control access and can revoke at any time

Built on Standards – OMOP CDM, FHIR, HL7; HIPAA compliant and end-to-end encrypted

Pros & Cons

Pros

Open source infrastructure allows full control and customization under your brand
Comprehensive data integration from diverse sources (providers, labs, wearables, genomics)
Real-time clinical trial matching provides direct value to patients
Patient-controlled sharing with granular permissions and revocable access
Built on healthcare standards (FHIR, OMOP) ensuring interoperability and compliance
End-to-end encryption and HIPAA compliance for data security

Cons

Pricing is not publicly listed; requires contacting sales
Deployment likely requires technical expertise due to open source infrastructure
Primarily targets organizations, not individual direct-to-consumer use

Best For

Disease foundations building patient-owned health records for their communitiesHealth Information Exchanges (HIEs) adding structured, longitudinal, patient-consented recordsSpecialty clinics and cancer centers deploying oncology records with pre-computed trial eligibilityOrganizations wanting to offer a comprehensive PHR without building infrastructure from scratch

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FAQ

What is PHRAME?

PHRAME is HealthKey's open source infrastructure stack for foundations, HIEs, and clinics to build patient-owned health records (PHR). It handles FHIR ingestion, OMOP normalization, trial matching, and more.

Who can use HealthKey / PHRAME?

PHRAME is designed for disease foundations, health information exchanges (HIEs), and specialty clinics such as cancer centers that want to provide patient-owned health records under their own brand.

Is HealthKey HIPAA compliant?

Yes, the website states PHRAME is HIPAA compliant and end-to-end encrypted.

Can patients share their records with doctors?

Yes, members can share their complete record with any provider instantly via a secure, permissioned link with a full audit trail.

Does HealthKey sell patient data?

No. The platform is built on the principle that patient data is never sold. Each member controls who sees what and for how long.